Tuesday, 25 January 2011

Virgin London Marathon 2011

A good friend of mine - Kirsten Knight - is running the London Marathon on behalf of the Muscular Dystrophy Campaign.
Kirsten has always had the ambition to run a marathon and has decided to tie this in with raising much needed funds for the MDC.

It goes without saying, any donation at all, large or small would be greatly appreciated. Please feel free to
donate anything you can afford for such a worthwhile cause.

Click here to go to Kirstens' Just Giving page.

And thank you again.

Monday, 24 January 2011

MDC East of England Stakeholder Afternoon

Good meeting today over in Cambridge with the East of England Stakeholders. Many topics discussed including the excellent news that 3 Care Advisers are planned for the region! Some really good speakers and extremely informative.

Views from Greenwich

National Maritime Museum

Yesterday i took a trip down to London to the National Maritime Museum.

I decided to go there for a few reasons - a friend of mine who is a designer needed to do some research, i wanted to use the new scooter from kudos first and also start my New Year resolution of taking a day trip once a month.

To help me with my resolution i ordered a copy of the "Rough Guide to Accessible Britain" which is available free from Motability if you hold a blue badge. The guide is packed full of useful information on many popular attractions throughout the whole of the UK. It covers details like attraction prices, directions and facilities - right down to the nearest places to park and any problems you may experience.

The museum itself was very good. As you'd expect with a central London attraction it is very well laid out with all the facilities you would need.

On site parking is available in the grounds with several pay and display machines with help on hand if required. Parking fees are applicable for badge holders, although entrance to the museum is totally free.
The entrance is found just a short scooter ride around the front of the building were a large information desk is found with plenty of staff to help and provide museum information. The museum exhibits everything from very early works of art, the early navigational tools through to early powerboats and sailing boats.
Facility wise, there is flat access throughout the venue, disabled toilets on each level and a cafe on both the ground and first floors with plenty of room to manoeuvre.

Just behind the museum just up the hill is the Greenwich Obervatory. The hill itself is an extremely steep climb and one where i just would have not attempted if i did not have my scooter as it was just too steep. When i got to the top of the hill the views were excellent and if i didn't have my scooter i would never have seen them. I took a few snaps and then made my well back to the museum for a well earned cup of tea - mainly to warm myself up!

Anyway, the museum is well worth a visit, excellent facilities and a very good day out.

Tuesday, 4 January 2011

New petition launched: Save DLA Mobility Component

The Muscular Dystrophy Campaign has launched a new petition to call on the Government to drop proposals to remove the Disability Living Allowance Mobility Component for people living in residential care - including children attending residential schools.

DLA Mobility Component helps to meet the higher costs of accessible public transport (where available), or makes you eligible for an adapted vehicle through the Motability scheme.

Without DLA Mobility Component thousands of adults of all ages with severe disabilities who are supported by the state to live in residential care will be unable to retain voluntary employment or simply to visit family and friends. Many families with children attending residential schools will not be able to fund their own adapted vehicle, and as residential schools only provide transport for the start and end of term, with no extra provision for weekends or holidays, disabled children may end up stuck as a prisoners in their own home during school holidays, unable to take part in leisure activities, or even attend essential hospital appointments.

We need your help to protect this vital benefit for children in residential schools and adults in residential care. Without the DLA Mobility Component, thousands of disabled people will be denied the chance to live full and independent lives.

Please sign our petition now